natalie-update.org

This year has gone by so quickly!  Natalie has had a pretty rough time this year so far.  She has pneumonia, again, as I write this.  She just can’t seem to get over it.  We have tried antibiotics, machines to help her cough and lots of other stuff.  Natalie has been smiling a lot through all of it, but she seems to sleep a lot also.

Natalie is doing well with school and still loves going.  When we ask her if she is ready to go to school in the mornings, she just smiles and laughs at us.  Sometimes she comes off the bus completely worn out and asleep.

We are preparing for a busy summer of family events and time together, so we are hoping that the warmer weather will help

Well, we were able to come home on Monday afternoon late from Children’s Hospital ICU.  Natalie has pneumonia again, but this time they think that she became hypoxic from it overnight causing her to not want to wake up and start this whole scare.

Natalie is doing ok so far at home, but she is on oxygen and we are keeping an eye on her vitals, mostly her oxygen saturation readings.  She is coughing a lot and clearing her lungs some, but it seems like it takes forever for her to get feeling better.

We would like to thank everyone for their prayers and emails of support for us, not only through this site, but my (elliott’s) other sites as well.  The blogging community is great!

Natalie is sleeping a lot now, but

Well, it has been awhile since I posted an update.  Almost 3 months.  It was because ”life was good” and Natalie was doing really well.

However, as things can change on a moments notice with a special needs child, today things changed.

Natalie came home from school asleep yesterday (Friday) and we didn’t think much of it as sometimes it wears her out and she is just wiped out and tired.  But this morning, she wouldn’t wake up.  And of course, I was out of town at a Fire Department conference to make matters a little more stressful.  All I can say is I am glad that there were no police running radar and my car held together to get home!

Natalie was unresponsive this morning (Saturday) and after checking with the doctors

We have finally gotten our newest feature up and running!

We have now added a photo gallery of Natalie to the site. Please be patient as we work to fix a couple of bugs with it, but it is functioning.

If you have a Wordpress site, and are looking for a plugin that will allow for easy integration with your Flickr photos, I can highly recommend using the Flickr Photo Album plugin from Joe Tan of tantannoodles.com. Thanks for the great plugin Joe!

Natalie has really been enjoying going to school lately. She has been doing really well and paying attention (in between the laughs we are told) to what is going on in class with her friends. She has also been sneaking some naps in at school lately too.

If you weren’t aware, Natalie had another Endoscopic retrograde cholangiopancreatography (ERCP) done in late September. Yeah, if you can say that in one breath without choking, you’re better than we are! Basically, it is a scope of her pancreas. What they were looking for with Natalie was the cause of her pancreatitis attacks. Since she has been healthy lately, they wanted to do another scope and see what might have found as the cause. The only thing